11 Websites:Organisations:Summaries:Related categories:Related keywords:Related locations:
marfan.huMagyar Marfan AlapítványThis website is the official website for the Hungarian Marfan Foundation, a non-profit organization dedicated to supporting individuals with Marfan syndrome and their families.Social Services → Community Support 596 foundation 919 research 1480 healthcare 2182 District XII → Krisztinaváros 98
wonderfloraandcmt.huWonderFlora & CMT AlapítványThis website belongs to WonderFlora & CMT Alapítvány, a foundation dedicated to supporting individuals affected by Charcot-Marie-Tooth (CMT).Community Organizations → Civil Society 885 research 1480 community 10128
bbsbarnabas.huBBS Barnabás Gyógyulásáért AlapítványThis website describes the BBS Barnabás Gyógyulásáért Alapítvány, a foundation established to support Buza Barnabás, a child with Bardet-Biedl syndrome.Health → Rare Diseases 36 developmental therapy 10 medical support 11 rare disease 23 Sümeg District → Ukk 125
adin.huEgyütt Ádin Kezét Fogva AlapítványThe Együtt Ádin Kezét Fogva Alapítvány aims to provide gene therapy for children with Duchenne syndrome.Social Services → Community Support 596 Social Services → Volunteering 102 medical support 11 rare disease 23 Debrecen District → Debrecen 6321
huntington.huMagyar Huntington TársaságThe Magyar Huntington Társaság provides advocacy for individuals affected by Huntington’s disease.Health → Rare Diseases 36 rare disease 23 patient support 30 neuroscience 40 research 1480
akekrozsa.huAgot BenceThis website is a blog maintained by Arany-Kovács Rozália, who has been seeking a correct diagnosis for a rare genetic disease for 39 years.Health → Rare Diseases 36 Business → Internet 7893 medical support 11 rare disease 23
care.togetherinsma.huBiogenThis website provides comprehensive information about Spinal Muscular Atrophy (SMA), a rare genetic neuromuscular disorder.Health → Medical Ailments 552 rare disease 23 patient care 268
pkuegyesulet.huMagyarországi PKU EgyesületThe Magyarországi PKU Egyesület is a Hungarian association dedicated to supporting individuals and families affected by phenylketonuria (PKU), a rare inherited metabolic disorder.Essentials → Health 18880 rare disease 23 patient support 30 Szigetszentmiklós District → Dunaharaszti 642
papaibotond.huBotond Lépéseiért AlapítványThis foundation supports Botond Lépesei, a young boy with a rare genetic disorder.Healthcare → Medical Services 2396 Social Services → Community Support 596 disability 375 surgery 615 rehabilitation 1201 treatment 2331 child 3543 Veszprém County → Pápa District 702
tsc.huMagyar Sclerosis Tuberosa AlapítványThe Magyar Sclerosis Tuberosa Alapítvány (Hungarian Sclerosis Tuberosa Foundation) provides support and resources for individuals and families affected by tuberous sclerosis complex (TSC).Health → Rare Diseases 36 rare disease 23 family support 152 neurology 202 mental health 1356 Hungary → Budapest 53962
angelman.huHungarian Angelman Syndrome FoundationThe website provides information about Angelman syndrome, a rare genetic neurological disorder.Society → Social Issues 587 rare disease 23 neurology 202 pediatrics 277 Hungary → Budapest 53962